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Rare Disease Day 2025
Illustrated booklet
30 May 2023
By IFPA
In 2023, GRAPPA published new guidelines for the treatment of psoriatic arthritis. People living with psoriatic disease must be empowered to take an active role in managing their condition.
Together GoodCare project team and with support from IFPA Advocacy Ambassador Karina Andrea Chavez, we have created the Psoriatic Arthritis and Reproductive Health Awareness Booklet.
It is common for women with psoriatic arthritis to give up the decision to have children because of their disease. It is important that couples and partners receive support so that they can balance the management of the pathology with their family planning. Psoriatic Disease does not decide for you.
If you would like a copy of the book and or would like to translate it to your native language please reach out to IFPA Communications Team. And update us with the translated material so we can share it Worldwide.
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Rare Disease Day 2025
Tip sheet on how to manage psoriatic disease when planning to have a family from parents to future parents.
Article from EUROPSO raises important points to remember when women are planning to have children.
Article Stigma, Care and Treatment
Advocating for Family Well-being in Psoriatic DiseaseArticle Stigma, Care and Treatment
Recommendations for Health Care ProfessionalsArticle Stigma, Care and Treatment
Family Well-Being in Psoriatic Disease - Caring for the CaregiverThe Impact of Psoriatic Disease on a Woman’s Career, Family Planning, Social Life and Mental: results from a 2021 survey on women living in Europe.