WPD 2023 in Spain

On October 29, we celebrated the World Psoriasis Day, one of the most important dates for our association. This day allowed us to put the unobvious needs of psoriatic patients into public view. For Acción Psoriasis, this was the kick off for a month full of events and campaigns in partnership with other companies with an enormous media coverage and important audience reach.

This year, we share the IFPA’s global awareness campaign, adapting their slogan and content to the Spanish language. So, under the slogan “Claves en Psoriasis”, Acción Psoriasis developed an extensive program of online presentations, interviews and podcasts with content made by prestigious health professionals that covered topics like prevention as a goal, the quality of life of patients with psoriasis, the patient’s right or the therapeutic approach to psoriatic disease in the last decades.

The activities program was launched on October 29, and was active until the end of November. This program included specific content for social networks, online live videos of experts, testimonies of patients and shared actions with scientific societies to extend the scope of our claims.

In order to create a space where all our supporters could get all our activities in only one click, we created a specific landing page that can be visited via this link: https://www.accionpsoriasis.org/dia-mundial-de-la-psoriasis-2023.html

Also, the World Psoriasis Day communication campaign included a specific campaign for social media, the sending of a generic newsletter on October 29 and a weekly newsletter with the agenda for the following seven days, as well as interactions with the media.

Furthermore, among the most notable actions in the media, Montserrat Ginés, vice president of Acción Psoriasis, participated in a program on Spanish public television to talk about psoriasis and psoriatic arthritis.

Image from the TVE program Mañaneros

Through this link, the program can be watched:

https://www.rtve.es/play/videos/mananeros/programa-35/6998285/

In reference to social media, the campaign was active from October until November, with posts on social profiles:

• Facebook.
• Youtube.
• Twitter.
• Instagram.
• TikTok.

In addition, Acción Psoriasis created illustrations to be shared on the Twitter accounts of scientific societies to support World Psoriasis Day, amplify our message and get new audiences.

Our objectives for the social media campaign were awareness, sensitization and information.

In accordance with these objectives, the actions on social media were:

• The creation of a playlist with all the online live presentations and podcasts, available in one click and easily identifiable on our Youtube channel. It includes 11 videos.

This list has more than 5.915 views.

• Facebook: we published 44 posts with an organic reach of 119.300 impressions.
• Twitter: 58 tweets with an organic reach of 72.900 impressions.
• Instagram: 18 publications including posts, reels, Instagram Live and stories, 58, with an organic reach of 130.800 impressions.
• TikTok: 4 videos with an organic reach of 5.569 views.

In addition, at Acción Psoriasis we also promote other dissemination and awareness campaigns both with biopharmaceutical companies and other entities. Thus, with the support of UCB we promoted the “En la dirección correcta” campaign, a social experiment that shows the stigma and fear of social rejection that patients with psoriasis suffer.

To do this, different cameras were placed in a shared car where one of the passengers was a patient with psoriasis, another person and the hook, and two people who were unaware of the experiment. Another of the outstanding actions was “Nina. Un viaje de la oscuridad a la luz”, an audiovisual work that narrates the physical and emotional impact of psoriasis, an initiative led by Acción Psoriasis and Almirall.

In conclusion, the highlights of WPD 2023 are:

• We have had over 5.900 views of our videos on Youtube.
• We have reached an audience of more than 328.000 people on social media.
• The voice of patients has reached the public to explain their testimonies and raise awareness about their needs.