webinar Care and Treatment
Good Care for PsA with Joel Nelson
Understanding the course of psoriatic arthritis (PsA) has led to important breakthroughs in therapy, yet many needs of people living with PsA remain unmet. Through the GoodCare Project for PsA , IFPA aims to unite with rheumatologists and the PsA community to raise awareness of updated treatment guidelines and promote their use worldwide. By spreading this information, we can strengthen advocacy efforts and work toward improving the quality of life for people with PsA everywhere.
Learn more about the project and download available resources.
Click to Download Resources. Now available in multiple languages
Good Care for Psoriatic Arthritis_Article
Patient Checklist: A tool to support you beyond the clinic
Psoriatic Arthritis Clinical and Care Guidelines: Treat to Target Guidelines
The GoodCare Project for Psoriatic Arthritis is dedicated to empowering people living with Psoriatic Disease and healthcare providers with accessible tools and resources for improved PsA management. By fostering collaboration and raising awareness of treatment guidelines, the project aims to enhance the quality of life for individuals living with PsA worldwide.
About : Treat to Target approach (T2T) GRAPPA Guidelines
What about comorbidities?
Using this model, IFPA created materials to support in your advocacy and journey for people living with Psoriatic Arthritis and loved ones.
webinar Care and Treatment
Good Care for PsA with Joel Nelson
webinar Care and Treatment
Good Care for PsA with Karina Chávez Saldaña (Psoriatic Disease Ambassador IFPA)
Article Care and Treatment, Toolkits
Good Care for Psoriatic Arthritis Podcast Serieswebinar Care and Treatment
Key Updates GRAPPA Guidelines for PsA
Watch and listen in to Joel Nelson live Podcast at the EULAR 2024 Conference
Link Below https://www.podbean.com/ew/pb-...
tool
Social media toolkit : Advocacy Psoriatic Arthritis
To ensure we reached out to Healthcare providers including Rheumatologist, IFPA worked closely with Psoriasis Hub & GRAPPA to develop materials for your doctor.
IFPA’s Good Care Campaign for Psoriatic Arthritis is raising awareness among healthcare providers to adopt T2T strategies in the management of PsA. IFPA advocates for clearer guidelines and further research to support effective treatment plans for individuals with PsA. IFPA also raises awareness about the impact of PsA on individuals' lives and the broader community. The personal and financial burden of PsA cannot be overlooked. The frequent need for medical appointments, medications, and specialized treatments can place a heavy strain on individuals and their families. Moreover, the societal impact, including lost productivity and increased healthcare costs, further highlights the urgency for better treatment support and resources.
Click Image to Watch the webinar
To ensure we reached out to Healthcare providers including Rheumatologist, IFPA worked closely with Psoriasis Hub & GRAPPA to develop materials for your doctor. IFPA’s Good Care Campaign for Psoriatic Arthritis is raising awareness among healthcare providers to adopt T2T strategies in the management of PsA. IFPA advocates for clearer guidelines and further research to support effective treatment plans for individuals with PsA. IFPA also raises awareness about the impact of PsA on individuals' lives and the broader community. The personal and financial burden of PsA cannot be overlooked. The frequent need for medical appointments, medications, and specialized treatments can place a heavy strain on individuals and their families. Moreover, the societal impact, including lost productivity and increased healthcare costs, further highlights the urgency for better treatment support and resources.
Test your knowledge using our quick quiz on the updated GRAPPA Guidelines
How do updated GRAPPA guidelines support physician decision making?
Article Universal Health Coverage, Care and Treatment, Toolkits, Reports
Psoriatic Arthritis: The GoodCare project Illustration BookletKathleen L. Gallant
Secretary, IFPA
Ex-Officio, National Psoriasis Foundation/USA
Pittsburgh, USA
Kathleen chairs the IFPA Task Force on Noncommunicable Diseases (NCDs), working on global psoriasis advocacy with the World Health Organization and United Nations agencies. She lives in Pittsburgh, Pennsylvania and serves as ex-officio to the United States’ National Psoriasis Foundation Board of Directors. Kathleen holds a Master’s degree in Public Administration / Nonprofit Management from the University of Pittsburgh Graduate School of Public and International Affairs.
Joel Nelson
Award-Winning Arthritis Patient Leader ; IFPA Ambassador
Award-winning patient leader and lived experience champion.
With the onset of arthritis as a child and psoriasis as a young man, Joel has experienced the physical and mental health impacts of psoriatic disease for most of his life. Using his creative skills as a Writer, Content Creator and Speaker, he creates peer support spaces and builds communities to ‘meet patients where they are’, facilitating conversation to amplify and promote the value of lived experience to improve outcomes.
Karina Andrea Chávez Saldaña
Founder - APAPSO Peru
Karina has been living with psoriatic disease since childhood. In 2015, she founded APAPSO, the patient association in Peru. Karina is a volunteer of the group "LOS PACIENTES IMPORTAN” (Patients Matter) in Peru, and “ACCION PSORIASIS” in Spain. She is a communications professional and enjoys sharing her own experiences as an active patient by writing inspiring stories about psoriatic disease and mental health.
Antonella Scali
Executive Director - Canadian Psoriasis Network
Antonella is the Executive Director of the Canadian Psoriasis Network (CPN), a not-for-profit organization dedicated to improving the lives of people with psoriatic disease in Canada. Antonella is a registered social worker with a background in direct clinical services and in policy analysis in community mental health.
UCB Pharma has provided financial support through an unrestricted grant for the delivery of the First phase of the Psoriatic Arthritis Awareness project, also known as the "Good Care for the Psoriatic Arthritis" Project. UCB Pharma had no influence or input over the content, including the selection of project members and the development of all associated assets, such as videos, podcasts, and articles. The support from UCB Pharma was solely in the form of an unrestricted grant.