News World Psoriasis Day, News, Real Stories
Rwanda: Hidden dangers of untreated psoriasisIFPA Psoriatic Disease Ambassadors speak up for change on all fronts. Ambassadors are strong advocates. They are individuals with personal experience living with psoriatic disease and/or as a family-member, close friend, or caregiver to someone with psoriatic disease. They publicly raise their voices to call out decision-makers, demand patient involvement in research, and strengthen the psoriatic disease community.
Do you want to join IFPA as a Psoriasis Ambassador?

Zakieyah Ajouhaar
Ambassador
Cape Town, South Africa
"I have been living with psoriatic disease for the past 10 years. As an ambassador I'd like to create a greater awareness about psoriatic disease especially in my community."
Iman AlGhaithi
Ambassador
Buraimi, Oman
"I was diagnosed with psoriasis 12 years ago. As an ambassador, I fight for myself before the rest. Raising our voice to the world to learn about psoriasis means a new life for every patient."
Jarar Ali
Ambassador
Karachi, Pakistan
"I have been living with Psoriasis since 8 years. As an Ambassador I want to convey this to the general public that Psoriasis is not contagious. The government need to work for equal access to treatment, work and support, immediately."
Inez Brogowska
Ambassador
Rzeszów, Poland
"I’ve had psoriasis since I was 4, with no clear cause or family history. It appeared suddenly and unexpectedly, surprising everyone."
Emmylou Casanova
Ambassador
Manila, Philippines
"I have been surviving Psoriatic disease for the past 20 years and now I am ready to raise my voice about my plight for the benefit of those who suffered like me. As an ambassador, I would like to stop the stigma, demand equal access to treatment, and insist that the national governments take action, Now!"
Linzi Dunlevy
Ambassador
Motherwell, Scotland
“I’ve been living with psoriasis for more than 10 years since I started teaching in my early 20’s. I have experienced 4 different types of psoriasis and I feel lucky that I am at a stage now where I am managing my psoriasis and I feel in control of it. I want to raise awareness so that no sufferer ever feels alone.”
Ilse van Ee
Ambassador
Leusden, Netherlands
"I am a professional patient advocate using my lifelong journey with psoriasis to fight for reproductive health, people with psoriatic disease, and more."
Kathleen L. Gallant
Ambassador
Pittsburg, USA
Hellen Wangui Gathere
Ambassador
Nairobi, Kenya
"I've been living with psoriatic disease for 15 years. As an IFPA Ambassador I advocate for equal access to medication and treatment the world over, and more importantly I advocate for completely doing away with stigmatization."
Pierre Celestin Habiyaremye
Ambassador
Kigali, Rwanda
"Where I come from, people see psoriasis as a curse. I want to correct the stigma and help people who have the same disease."
Yervand Hakobyan
Ambassador
Yerevan, Armenia
"As a practicing hematologist living with mild psoriasis, I believe in cooperation between patients and the medical community for advocacy."
Abhinand Krishnashankar
Ambassador
Washington, DC, USA / Tuticorin, India
"I've lived with psoriasis for over 12 years, often misdiagnosed and misunderstood. My South Asian roots and life abroad taught me to embrace my skin and respect diverse treatments and identities."
Christina Larsen
Ambassador
Fjenneslev, Denmark
"I have been living with psoriatic disease for 30 years. As an Ambassador I fight for equal treatment and to eradicate taboos."
Edmund Lau
Ambassador
Singapore
"Psoriatic disease has brought pain, delays in care, and emotional strain. Despite better treatments and growing support, high costs and daily challenges remain—reflecting a struggle many still face."
Leticia Lopez
Ambassador
San Juan, Puerto Rico
"I was diagnosed with psoriasis at the age of 12 and developed psoriatic arthritis when I was 18. I founded APAPP, the patient association in my country to meet the need for patient support that I uncovered while writing my doctoral dissertation in Education (specializing in Guidance and Counseling)."
Joel Nelson
Ambassador
Norwich, UK
"I am an arthritis and psoriasis patient advocate and writer, sharing my story of psoriatic-associated Juvenile Idiopathic Arthritis to raise awareness."
Gabriel Ordinola Flores
Ambassador
Lima, Peru
"I want to be an ambassador because I know how isolating this lifelong condition can be. I want to raise awareness so people stop judging and truly understand it."
Kate Reynolds
Ambassador
Windsor, Canada
"After surviving a severe GPP flare in 2019, I become motivated to advocate for better awareness, diagnosis, and treatment for people living with rare forms of psoriatic disease."
Chiara Lionel Salim
Ambassador
Jakarta, Indonesia
"I have been living with psoriatic disease for 13 years. I have found advocating for psoriasis as my mission in life with the goal of eradicating stigma, educating people on psoriasis, and uplifting their quality of life, especially in Indonesia."
Shrestha Tiwari
Ambassador
Raipur, India
"Becoming a Psoriatic Disease Ambassador would help me grow the impact I’ve started in my community. I’m passionate about raising awareness and breaking stigma, and this role would let me reach more people with support, education, and hope."
Samantha Wood
Ambassador
Harare, Zimbabwe
"I want to be a part of driving change, and helping others - especially in my country."
Orie Yamashita
Ambassador
Tochigi, Japan
"I have been living with psoriatic disease for about 30 years. As an Ambassador, I would like to raise awareness of psoriasis, aiming for a world without suffering from psoriatic disease. I would also like to disseminate correct information about psoriatic disease to patients and society."
Camille Lancelot
Community Manager
Camille runs IFPA's member services and capacity development programs. She has a background in development work and teaching as well as a Master in Cultural Projects for Development. Camille has lived and worked in the USA, Senegal, Benin, France, and Sweden.
News World Psoriasis Day, News, Real Stories
Rwanda: Hidden dangers of untreated psoriasis
Article Advocacy, Real Stories
“Before the resolution, many people did not fully understand that psoriasis is a serious complex systemic disease”webinar World Psoriasis Day, Real Stories
Hands to Carry
Article Real Stories
My World Changes on World Psoriasis Day 2022
Article Opportunities for Members, Real Stories
Apply Now! IFPA Ambassadorwebinar Living with Psoriatic Disease, Real Stories
Living with Psoriasis: A Conversation with a Patient and Patient Advocate
Article Stigma, Living with Psoriatic Disease, Real Stories
Emmylou Shares Her Story with Rare Psoriatic Disease
Article Advocacy, Living with Psoriatic Disease, Real Stories
Chiara Shares Her Story with Erythrodermic Psoriasis